Crap, init?
I know my hubby suffers more than I do when I walk into something or bang my head for the 900th time. Actually, I find that to deal with these things you just have to accept the fact that you end up looking like a clumsy tosspot a lot of the time. And try to not bother about it. My condition also leads to partial / complete loss of sight. I am already registered as partially sighted at 28. Bollocks to that!

I have Retinitis Pigmentosa - never heard of your man's condition but sounds like same kind of thing. So hugs to both from me. People who don't live with this or live with someone who has it don't understand that it's a serious disability to normal life, because they see us use computers and walk around unaided sometimes. But those live with us and love us know it all too well. Kudos on caring about him! I know we can be tiring and grumpy bastards sometimes :)

xxxx
(The Apeface Cherub is not a cunty-uber-cunt, Wed 29 Jul 2009, 15:49, 1 reply)

Another one for the blind club here
I've got myopic macular degeneration. Been registered blind for nine years. Fiance has one prosthetic eye (lost it as a kid playing football - had a collision and the arm of his glasses speared his eye = no more eye.) and the other totally blind due to all sorts of severe conditions. So we're well into the clumsy tosspot club here.

People cut me more slack now that I have to use a guide cane to get about, and the fiance has a guide dog. Not much of a trade off though. I'd rather still have enough sight to be thought of as merely a clumsy arse rather than "that poor blind bird."

Still, it could be worse. We care about our loved one, and are cared about, as are you guys by the sounds of it - trite as it sounds that's worth a shit load in my book.
(womanwhocanonlylivewithdogs, Wed 29 Jul 2009, 16:01, closed)

To the post above, and the one above that
Warning: Gooey relationship rubbish ahead. I think the most important thing to do in a relationship is to care for and look after each other. When one, or both of you has a condition (keratoconus for him) or a disability (dyspraxia/Aspergers for me), that care has to run to another level. When the light is bad, I hold his hand to guide him, and when I wander aimlessly into a road with the dyspraxia, he pulls me back onto the pavement to stop me getting run over. So it doesn't happen to a "normal" couple, but I think it just shows how much two people can love each other (even the way of showing it is a strange and the 'care' is an automatic thing to do).
( Bats, Wed 29 Jul 2009, 16:16, closed)